Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.



I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. Yeah...life sucks, but I still rock.



3.24.2010

"What are they even talking about?"

UP YOURS

I'm a mixed breed when it comes to politics. A socialist-capitalist, perhaps; an independent with no party to call home, not green or blue or red...but maybe pink. Yes, pink would work just fine for my party colors.

But who the f*** cares?! We have basic human rights!!! We have healthcare reform!!! Right? So, up yours, Republicans, with your nay, nay, nays. It's our house now, and you're not invited.


UHHHH....HUH?

I have no idea yet how, when, or to what extent Obama's new plan will benefit me and my universe-wide fellowship of chronic sickos, neuro gimps, 30-yearish-olds with bones of 80-year-olds united, disablees [sic] on the dole...

Yet, I have big plans, with a capital B, for my reformed healthcare plan...once I figure it out. One thing Obama didn't account for - neuro-ites with cognitive conundrums. So Pres, if you're reading this, could you please have one of your lackeys produce an interactive how-to-benefit-when-you're-a-gimp online tutorial rendered for a 5th grade reading level?


HAHAHAHAHAHAHAHA

Regardless, I'll be checking in with the "right" people to find out what my new rights and responsibilities are as a socially secured certified gimp. In the meantime, we might as well have a giggle.

Thanks to MoveOn.org, I got my daily guffaw, and I'm here to share the golden gift of levity. Apparently, it holds similar benefits to Resveratrol and broccoli.


From MoveOn.org:

Yesterday, after President Obama signed health care reform into law, Republicans were out in force doing what they do best lately: spouting total, ridiculous, incomprehensible nonsense about reform.

When it comes to health care, it's like they speak another language. "Socialism"? "Government takeover"? "Death panels"? Do they even know what those words mean?

If you're confused, you're not alone. But we can help. Check out our fun new video that translates all this Republican-speak into plain English:






PS We have one more responsibility:
"The House has passed historic health care reform. Now it's time for the Senate to finish the job. Pass the final fixes to the health care bill immediately."

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In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
To play the slide show, click the big play button in the center of the screen, then the small one in the bottom left corner. Click here for more advanced viewing instructions, and select "Help."

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