To my Dear Neglected Neuro Detour-ers,
See. I do think of you, even when I’m just out of the hospital for a totally non-neuroite new problem, a blood clot in my fistula, which is much more complex, daunting, and death-defying than I care to get into (other than I could have died because when I asked about this hard painful lump taking over the guts of my fistula, the infusion nurse told me “no big deal" and "not to bother doing anything about it," but a few days passed as it grew to the size of a hacked off-genetically-altered-steroidal-pigeon-belly without its song or audible heart, and the now unfamiliar pain center at the fold of my elbow puffs out its hairless chest again and swallows it’s falsely remembered calming trill of its thrill) on this cold-sweat-dim-and-gray, no-plans-beyond-docs-and-prods, ass-still-sore=from-radiology’s-4-hour-wait-for-a-1-hour-ultrasound…of-not-the-pain-nor-the-uber-knowledgable-tech-shall-I-complain, back-on-morphine-for-the-fistulatic-pain, therefore-off-the-CRPS-LDN-clincial-trial, 4-days-to-IVIg, 3-weeks-to-Ketamine-in-Hackensack (yes North Jersey - long story; we’ll catch up, I promise), 4-weeks-to-knowing-if-“dangerous” surgery-will-be-required (like you haven’t heard the words surgery and dangerous coupled before!) atypically irksome PMS-ish mis-filed-and-incorrectly-dated-November-Friday.
You will receive a holiday, happy new moments moment, or just for the eff of it gift from someone at some time in the near and distant future.
Bookmark this article (hyper-and-nakedly-linked several times on this page and in the post title) from About.com’s Multiple Sclerosis Portal, and print it out in duplicates; post to your refrigerator, blog, email auto response, Facebook page, Myspace Page, guerilla flyer tactical dissemination on the street, fold it up and place it under driver’s (parked only) wipers (hopefully before they’ve begun their gift shopping), take a picture of it and Instagram it even!
This is one of the first down-to-earth practical should-be-titled Miss Manners for MS and other Chronic Illnesses and Rare Diseases and Disability list of Dos and Donts that’s truly relatable to both the sicko and the sickee (the friend or gift giver to the sicko).
For your ease and reading pleasure, I’ve copied and pasted, without permission, the beginning of the article below. Click on the omnipotent link to get to the juice.