Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.



I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. Yeah...life sucks, but I still rock.



1.06.2009

Site Update: The first poll is live

Site Update is a new posting series on Neuro Detour.


ABOUT SITE UPDATE POSTS
No politics. No personal ramblings. No philosophical meanderings. Just a simple note or video to say, hey, check out this new feature.

In the current plan in my head, most of these new features will make Neuro Detour more interactive, give you more of a voice, (selfishly) help me get to know you better, or make it more user-friendly. Of course, this takes time and energy - two basic elements of normal living that can be evasive or downright non-existent to a person fighting transverse myelitis, working a full-time job, and/or attempting (a bit of) a social life. (I'm extending this list to all for self-implantation.)

But this is me, and it's 4:12 AM, and I've taken my night meds cocktail (which now includes generous amounts of oxycodone, a sleeping pill, gabropentin, clonipin, cholesterol meds, and a glass (or 2) of wine), I can't see the computer screen (my vision is going now too...more on that soon), and I have a big day tomorrow for which I should be getting some sleep. So basically, expect this to be the first of many (or some...REMINDER TO SELF: a person with TM shouldn't overcommit) site update announcements. (Sidebar: Oops. I got personal. Yet another broken promise...I'm as bad as most doctors.)


FINALLY, THE SITE UPDATE(S)
1. I've added a reader's poll to the right rail of the blog (just under "Subscribe to Neuro Detour). Look for the heading:

"New Poll: What made you interested in checking out Neuro Detour? (select all that apply)

It's a little bit serious, a little bit silly, just like me. So, please humor me or yourself, take the poll, wait for the responses to roll in, and compare them to yours. It's not just about humor; I really want to know about you. So, please be honest.

2. You can now get to Neuro Detour 2 ways:
a. Same old http://neurodetour.blogspot.com, or
b. www.neurodetour.com

That's it for now.
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Thanks for sharing your comments on my blog. Please stop back soon or subscribe by clicking http://feeds.feedburner.com/NeuroDetour.

If you're a Philly-region person with TM, please consider joining the Transverse Myelitis Philadelphia network (http://www.facebook.com/inbox/?ref=mb#/group.php?gid=44446668472), a new social networking group that I started for people with TM so that we can meet and chat casually. It's only on Facebook for now, so, if you haven't already, join. It's easy.

Best,
Melanie

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In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
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