Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.

I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. sucks, but I still rock.


Take Action...There's Hope for Myelin Repair

This just in from the Myelin Repair Foundation

Bottom line:
Myelin Repair = Spinal Chord Disability Extinguished. Wow.

Top shelf:
All donations are matched - kind of like doing birthday party shots.

Who knows:
I'm just doing my job here of spreading the word. It's up to you to make the decision if this is a clinical trial you'd like to support. If I had even an extra $10, I'd chip in...but I don't. My feeling: it's worth the investment. Multiple Sclerosis (MS) is not the only demyelinating disease out there. Transverse Myelitis (TM) fits the bill too.

The Call to Action:
(copied from the Myelin Repair Foundation Web site)

Help Us Raise $100K to Fight MS!

Steve Miller, Ph.D.

Steve Miller, Ph.D.
MRF Principal Investigator

Myelin Repair Foundation (MRF) wants to fund a clinical trial for a promising way to treat MS -- by "tricking" MS patients' immune systems into not attacking their myelin.

MRF Principal Investigator Steve Miller, Professor of Biomedical Sciences from Northwestern University, has a promising idea for an MS treatment.

In multiple sclerosis, the immune system sees myelin proteins as foreign material and attacks them. Recent research indicates that we may be able to "trick" the immune system into believing that the myelin protein is not a foreign material.

Bringing this idea to a clinical trial will help us determine whether this innovative treatment is safe and effective for MS patients.

Myelin attacked by immune system

Visualization of myelin protein attacked by T-Cells

MRF needs your help to make this clinical trial a reality.

Help us raise $100,000 to fund this trial.

The total cost is over $2 million. However, through collaborations with other funders, the MRF is providing only $200,000 for the trial over the next two years. ($100,000 for the first year and $100,000 for the second year).

Donate today. Help us reach the goal of $100,000 by June 30, 2009.

Your contributions to the clinical trial will be matched 100% thanks to another generous donor, bringing us straight to the finish line!

Spread the word to 10 friends and family about the potential of this clinical trial and help us spread the word to more people.

Scott Johnson's signature

Scott Johnson
Myelin Repair Foundation

Notes: This is an early stage clinical trial being conducted in one research institution. All clinical trial patients have already been selected.

If for some reason the clinical trial does not move forward as planned, you can be assured that 100% of your donation will be used to support other myelin repair research conducted by the MRF.

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Learn More:

Donate Today

Show your support for speeding up research on MS by funding our clinical trial!

Use the widget above to help spread the word.

Tell Ten Friends and Family

Tell friends and family about Myelin Repair Foundation's promising clinical trial. Encourage them to learn more about our work and donate to help raise $100K!


Register for our e-Newsletter

Learn more and keep up-to-date on the progress of research on myelin repair, the next REAL hope for treating Multiple Sclerosis.

The Myelin Repair Foundation is the only organization exclusively devoted to investigating the way in which the body creates and repairs myelin — one of the most promising approaches to treating MS


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If you're a Philly-region person with TM, please consider joining the Transverse Myelitis Philadelphia network (, a new social networking group that I started for people with TM so that we can meet and chat casually. It's only on Facebook for now, so, if you haven't already, join. It's easy.


In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
To play the slide show, click the big play button in the center of the screen, then the small one in the bottom left corner. Click here for more advanced viewing instructions, and select "Help."

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