Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.

I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. sucks, but I still rock.


We're Popular! Even Tho I'm a CVS Screamer.


Neuro Detour has reached more than 3,000 visitors since I started this blog in October!

I've had other blogs...I still have other blogs, but not one of them has reached the popularity of this one. Being a neuro sicko means having lots of "Who would have thought" thoughts, but, who would have thought that being a neuro sicko would "make you friends and help you influence people"?

Thanks to everyone who reads, reacts, responds. I'm honored to have you has a reader. I'm honored if anything I write makes you take some action or understand this screwed up world we neuro-ites and disabled people live in.


I have a confession to make.

Not only do I have occasional 'roid rage, I also experience hyperactive stimulus responses - intensified hearing, smelling, body reflexes. You name it, this Transverse Myelitis (TM) girl has it. And sometimes it's OUT OF CONTROL.

Example: The Latest and Greatest Incident
Yesterday in CVS, while picking up my meds (I'm a regular) after my last plasmapharesis treatment, I was gimping down Aisle 1 when a suited short man with paralegal (no offense paralegal readers) hair, came sprinting toward me. As he whisked by, I felt the wool of his suit brush against me. The wind of his mad dash nearly knocked me over.

Balance is not a neuro gimps specialty - even an ex-dancer neuro gimp.

Even though the only thing I wanted to do was get home, sink into my couch, take my anti-spasmodic meds, and crash, I stopped, standing my gimpy ground.

So, of course...

I said (not so politely):
Excuse me.

And he said, NOTHING.

So, as he grabbed his precious 1 gallon plastic bottle of mad cow-laced milk from the cooler, I turned and yelled the obvious:
(with equal emphasis on both syllables)

In his rush to return to line, he speed-walked past me with a vicious stare as though to say, how dare you yell Asshole in a crowded CVS. Well, his silent aggression pissed me off even more.

And I responded:
Didn't you see a woman with a cane standing here?

He spoke!:
Didn't you see the box that blocked my vision?

Com'on smarty pants, the box, which was a small "display" was behind couldn't come up with a better, more logical, more "suited" response?

And, I, officially-licensed-cane-carrier (which I couldn't use as a weapon even in a non-post-plasmapharesis state), retorted:
I'm glad your life is so much more important than everyone else's.

And he squawked the only appropriate response:

No sir, Jesus does not help jerks with jobs and social responsibility blindness.


I hope you see this is as a sort of grown-up-gimp fable.

Although my actions, or rather reactions, may not have been...ummm...the most appropriate, I strongly believe they were warranted. After all, it is my duty as a gimp advocate to teach people about compassion for durable-medical-equipment-bearing-neurologically-impaired-immuno-compromised individuals.

I realized that by saying, "Didn't you see a woman with a cane standing here," I was taking responsibility for my people - my companions in this often-hellish-life we exist in and endure. This was not about ME. It was about the old lady who's unsteady on her feet, the sad jobless person who's lost in a head-lowered dreamworld of job-mourning, but especially gimps like me - glamour or non-glamour alike. Maybe I need to listen to (reading books is still a TM/encephalitis-induced challenge) Dale Carnegie, but...

I hereby condone and crown anyone who isn't afraid to yell ASSHOLE, at an asshole running down a narrow aisle in CVS's across the world.

Off you go...

Take control. Take action. Make the world a more compassionate land through malediction. Make people's lives who suck, rock.

Go for it!

Please share your tales of curing through cussing here. Thanks!

No comments:

Post a Comment

Thanks for sharing your comments on my blog. Please stop back soon or subscribe by clicking

If you're a Philly-region person with TM, please consider joining the Transverse Myelitis Philadelphia network (, a new social networking group that I started for people with TM so that we can meet and chat casually. It's only on Facebook for now, so, if you haven't already, join. It's easy.


In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
To play the slide show, click the big play button in the center of the screen, then the small one in the bottom left corner. Click here for more advanced viewing instructions, and select "Help."

Twittering Mel

    follow me on Twitter

    Neuro Art Latest

    See My Art Published in Monkey Puzzle Issue #7

    See My Art Published in Monkey Puzzle Issue #7
    Representing TM through Art and Dialogue...Locally, Nationally, Virtually.