Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.



I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. Yeah...life sucks, but I still rock.



6.22.2010

Let's Play! Scatterneuries!!

CATEGORY: RSD (CRPS) & BOOBS


TYPE: Multiple Choice

DEADLINE: July 15, 2010.

JUDGE: My Doc

Learn the rules and reasons for "Let's Play! Scatterneuries!!"



Melanie is one swollen boob smaller thanks to my most recent IV ketamine boosters week. With my next set of boosters now 1 month away (for the first time), the question is:

  1. Will Melanie have to wait a whole month for the other boob to deflate?
  2. Will boob A catch back up to boob B in RSD swelling first?
  3. Will Melanie just remain whopper-boobed (and is there a medical term for that)?

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If you're a Philly-region person with TM, please consider joining the Transverse Myelitis Philadelphia network (http://www.facebook.com/inbox/?ref=mb#/group.php?gid=44446668472), a new social networking group that I started for people with TM so that we can meet and chat casually. It's only on Facebook for now, so, if you haven't already, join. It's easy.

Best,
Melanie

In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
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