Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.

I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. sucks, but I still rock.


Back to the ho'po'

For those of you that don't have a home away from home, ho'po', is melanie-ism for hospital. Second time this's a slow 2011!

This new flare started last night; when I have more time I'll explain it to you. But for now, just wanted to let you know that myself, and all the posts I haven't finished for posting yet will be in Hahnamann for a week or so, give or take.

Check back soon.

Your Chronic-Neurochic-Glamour-Gimp-alicious-Sista',

1 comment:

  1. Hope everything's ok Mel! Glad you were able to get to the ho'po' fast!


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If you're a Philly-region person with TM, please consider joining the Transverse Myelitis Philadelphia network (, a new social networking group that I started for people with TM so that we can meet and chat casually. It's only on Facebook for now, so, if you haven't already, join. It's easy.


In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
To play the slide show, click the big play button in the center of the screen, then the small one in the bottom left corner. Click here for more advanced viewing instructions, and select "Help."

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