Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.

I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. sucks, but I still rock.


"Yoga Helps Stroke Victims"... so shouldn't it help all of us gimps too?

Yoga Helps Stroke Victims

Not certain how reliable the source is, but as an ex-yoga practitioner of almost 15 years (before Neuro-ism Struck.... ironically during a morning yoga class), and someone who was probably been a minus 6 on the balance scale (see article: linked above and in the post title), and an I got bored with the 6 exercises you had to give me in aqua therapy so I created my own yoga-qua-therapy (including a water version of downward dog without getting your hair wet thus no wet barking dog smell to ruin the serenity with our hyper-superpower-sensitive senses)....

I think this is exciting. Finally we nationalist-capitalist-imperialists are embracing some of the wisdom and natural healing available to us for centuries from other cultures. So turn off your xenophobe, and PLEASE SHARE any ideas or experiences with incorporating non-occidentalist-pills-infusions-scalpels-long hospital stays experiences, practices, trials, accidents, or tribulations with out of the good-ol'-American-box medical practice that we all know and love so well.

Looking forward to hearing what's worked or not worked or might be working for you - especially if it's free :).

I've missed you,

PS I'm in an art show in NYC this week with funds going to research and treatment for patients with rare and incurable diseases. If you're a New Yorker - or going to be in NYC-er, and you want more info, comment here and when I can get off my couch potato ass (just finished day 3 of high-dose IVIg infusions), I'll post the details.

PPS I actually own that book... and it's fascinating and appropriate for anybody interested in body-mindanatomy... perhaps served with a hint of neuroplasticity.

Here's another book on my shelves. This one, I'm reading right now. I kept the image in because 1) I couldn't get it to delete; and 2) I felt it would be a good visual to differentiate the subject from the likes of Barbie and other fine plastic ware.

For the record, I purchased my copy from my local individually-owned bookstore - Joseph Fox Books - for about 2x what Amazon is offering.


  1. We need everyone to work together. I also believe that chronic fatigue is not an illness. It responds to good sleep. But CFS/ME does not. You can sleep 10 hours and still not wake up refreshed.

    1. May I ask why you hold this belief? or how you came upon this decision? If you could share some resources too that'd be helpful.

      I know - from personal experience and the explanation from some of the world's leading neurologists and neuropsychiatrists that with certain neurological disorders, such as CRPS/RSD (which I have), one can not achieve REM state. And although there are many stages of sleep, most people with CRPS may sleep for an hour or 2 at a time, or not at all.

      I don't knoe much about Chronic Fatiguee Syndrome as it stands alone, but I'll certainly do some research if you care to discuss this interesting topic further.

  2. Yoga is good in promoting health, improving mood, effective in enhances bodily awareness, increases physical control, and eliminating stress. When I practiced yoga, I can feel that my mind and body are relaxed. It’s really helpful in reducing my pain and improving my mood. Aside from practicing yoga, I also do another form of Chinese energy medicine, a specialized qigong, called a Yuen method. Before, when I do the yoga I felt a lot of pain that it’s hard for me to flex and stretches out. Once all my negative energy is all cleared, I can advance my yoga moves without limitation. And this can also help me strengthen my body and lead a stress-free life. Here are some video resources with learning tips that demonstrate the benefits of energy medicine.

    1. Dear,

      I totally agree. When I lived in Germany I studied Qi Gong & Accupressure from a master. I've been looking for classes, but mobility & $$$ are an issue.

      The video links you mentioned didn't show. I'm really interested in learning about this Yuen method, and perhaps you could share what limitations or challenges you are overcoming through this practice.

      Can you recommend any full-length DVDs for home practice?

      Thanks for sharing!

  3. Hi Melanie! :)

    I'm a loopy lupus patient with pernicious anemia and a few other autoimmune diseases (they just love to bring the company of other autoimmune diseases, don't they!?), and when I had the chance to live in Singapore for awhile, I had the opportunity to try out Chinese herbal medicine. It was prescribed by a physician who was both a medical and Chinese doctor. :) It tasted HORRIBAD, to say the least, but I found it helped with my bladder issues, and I did feel less joint pain while I was there. I don't know if it was the placebo effect, or just being a radically different climate than home, but it was a really interesting experience!

    Also, I love your writing! And the word yog-aqua. :D Where is a yog-aqua class in my area, dammit!

    1. Thanks zelbess,

      You make me want to go to Singapore... if only I were allowed to leave the country! (and get out of bed :) ). I'm not able to get any of my normal treatments right now because I've been having low blood pressure and respiration problems with my Ketamine & IVIg infusions. These are my lifelines. So, I've decided to return to the alterative medicine guru of Philadelphia (I started, but stopped due to over-doctorism-stimulation).

      As far as the yog-aqua, it's all in my head and body right now. I was a certified personal trainer among other fitness-y certs, butI have this amazing physical therapist right now who really gets it, and we talked about making a video series or DVD/Book together. But all of that takes time and money.

      Shouting out to the philanthropists!!!!


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In Pictures

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