Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.



I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. Yeah...life sucks, but I still rock.



2.18.2011

Back to the ho'po'

For those of you that don't have a home away from home, ho'po', is melanie-ism for hospital. Second time this year...it's a slow 2011!

This new flare started last night; when I have more time I'll explain it to you. But for now, just wanted to let you know that myself, and all the posts I haven't finished for posting yet will be in Hahnamann for a week or so, give or take.

Check back soon.

Your Chronic-Neurochic-Glamour-Gimp-alicious-Sista',
Melanie
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In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
To play the slide show, click the big play button in the center of the screen, then the small one in the bottom left corner. Click here for more advanced viewing instructions, and select "Help."

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    Neuro Art Latest

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    See My Art Published in Monkey Puzzle Issue #7
    Representing TM through Art and Dialogue...Locally, Nationally, Virtually.