Living Obliquely
Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.
I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. Yeah...life sucks, but I still rock.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.
I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. Yeah...life sucks, but I still rock.
Showing posts with label Glamour Gimp. Show all posts
Showing posts with label Glamour Gimp. Show all posts
11.19.2010
Ketamine Cam: 11.19.10, Day 3 of 3
I tried... this time i even used you tube's video record format . ugggh. what is this world coming too?
See yinz in 'da burgh an''at.
Labels:
Belief 'n Religion,
Clinical Trials,
Docs 'n Appointments,
Events,
Glamour Gimp,
Healed by the Power of...,
Hope,
Hospital Livin',
Ketamine,
Mel's Meanderings,
Pain,
RSD,
Treatment,
Update,
Video
11.03.2010
Top 5 Benefits of Using Natural Health and Beauty Products | Overstock.com
Check out what capitalism has to offer our tortured bodies:
Top 5 Benefits of Using Natural Health and Beauty Products | Overstock.com
PS Picture added for your own enjoyment.
| Nose Up Lifting Shaping Beauty Clip |
PS Picture added for your own enjoyment.
5.07.2010
Ketamine Cam: Day 5, Friday, May 6, 2010
I almost typed that it was 2015, not a wall street bubblegum thumb-o just a mel-o-neuro...but alas, I almost lucid enough to catch my own bottom breaking catastrophes, or at least i have the doctors who can point me in the right direction.
Todays' cam includes a mom cameo and no unintentional videotaping screw-ups, so sit back, relax, take an ativan if your doc prescribes and enjoy the ride...
Todays' cam includes a mom cameo and no unintentional videotaping screw-ups, so sit back, relax, take an ativan if your doc prescribes and enjoy the ride...
Labels:
Clinical Trials,
Family 'n Friends,
Glamour Gimp,
Healed by the Power of...,
Hope,
Ketamine,
Living with Limitations,
Mel's Meanderings,
Nutty Neuroisms,
Pain,
RSD,
Treatment,
Update,
Video
5.03.2010
Yesterday I Walked. Today I Tripped. Tomorrow...
...I'll be tripping my swollen body off again from the experimental ketamine infusion treatment that I began today to combat neuro disorder #4: RSD/CRPS. The good news, I'm in the hands of the world's most competent ketamine infu-sycian - my neurologist, Dr. Schwartzman.
If only I could record my thoughts and visions during any 1 of the 10 4-hour treatment sessions - I'd be the most prolific gimp writer this world has ever known, but, alas the ketamine/versad infusion doesn't welcome the use of the body in time with the mind.
Anecdotally, what made my treatment super trippy was the music: circa 1980/90's from Erasure to The Cure to Smashing Pumpkins and some hard rock band that begins with T that I can't remember. Envision underground/alternative meets strip joint/under-aged dance club for girls wearing black and white striped thigh highs (yes they were in style 20 years ago too) and boys wearing black nail polish and combat boots (another fashion that has made its debut more than once). I won't get into any more detail on this coinkydink - but it made the treatment all the more nostalgic errrrrr ummmmm.
AND THEN THERE WAS THE WALK
Yep. We did it. Walking and wheel-chairing (I think I made about 1.3 miles of the 4 upright).
And we're still doing it. We're still raising money for MS, believe it or not. Donations are still coming in, and if someone were to graciously donate $140 to me personally, I would become the #5 top individual fundraisers.
Thanks to teammate and former classmate and roommate Kathy - straight from the ocean waves of Wilmingon, NC - our team brisked the 4 mile runway in original Mel's Neuro Detour F**K MS, TM, and RSD matching tees. (And you can too, we have some extras).
Our small but valiant team, including members from Brooklyn (Rob, pictured behind me) to New Mexico (Ty) in the flesh!!! - friends of 20 years or more, mixed in with new friends from my new Philly home who will hopefully continue to be with us for what is our new annual meeting grounds regardless of zip code.
My post-trippy point, is that we rocked the MS Walk 2010 with grace, poise, comaraderie, hope, and more money than I ever was able to raise from a Junction Dance Theatre fundraiser!
TOMORROW, as in, NEXT YEAR TOMORROW
We've committed to reconvening next year, and to increase our cast and crew, so mark your calendars now, so we can move from Top Team #9 to 5 (trust me, we'll never beat #1 - they have us by 140 helpful teenagers).
TOMORROW, as in, TOMORROW TOMORROW
This sloppy, occasionally slapstick post is probably all you can expect from trippy old-bones mel for the next couple of weeks. Tho, if I had the energy following treatments it would do my writer's pen justice to record my visions.
I'm already feeling some relief in pain, and fat face is depleting, yay yay yay. Let's hope this continues, because not all RSDSers respond to this treatment (which, Aetna, my insurance will not cover BTW...surprise, surprise).
So...my visions and I will see you in a few weeks, and if we meet again sooner, won't that be nice.
If only I could record my thoughts and visions during any 1 of the 10 4-hour treatment sessions - I'd be the most prolific gimp writer this world has ever known, but, alas the ketamine/versad infusion doesn't welcome the use of the body in time with the mind.
Anecdotally, what made my treatment super trippy was the music: circa 1980/90's from Erasure to The Cure to Smashing Pumpkins and some hard rock band that begins with T that I can't remember. Envision underground/alternative meets strip joint/under-aged dance club for girls wearing black and white striped thigh highs (yes they were in style 20 years ago too) and boys wearing black nail polish and combat boots (another fashion that has made its debut more than once). I won't get into any more detail on this coinkydink - but it made the treatment all the more nostalgic errrrrr ummmmm.
AND THEN THERE WAS THE WALK
Yep. We did it. Walking and wheel-chairing (I think I made about 1.3 miles of the 4 upright).
And we're still doing it. We're still raising money for MS, believe it or not. Donations are still coming in, and if someone were to graciously donate $140 to me personally, I would become the #5 top individual fundraisers.

Thanks to teammate and former classmate and roommate Kathy - straight from the ocean waves of Wilmingon, NC - our team brisked the 4 mile runway in original Mel's Neuro Detour F**K MS, TM, and RSD matching tees. (And you can too, we have some extras).
Our small but valiant team, including members from Brooklyn (Rob, pictured behind me) to New Mexico (Ty) in the flesh!!! - friends of 20 years or more, mixed in with new friends from my new Philly home who will hopefully continue to be with us for what is our new annual meeting grounds regardless of zip code.
My post-trippy point, is that we rocked the MS Walk 2010 with grace, poise, comaraderie, hope, and more money than I ever was able to raise from a Junction Dance Theatre fundraiser!
TOMORROW, as in, NEXT YEAR TOMORROW
We've committed to reconvening next year, and to increase our cast and crew, so mark your calendars now, so we can move from Top Team #9 to 5 (trust me, we'll never beat #1 - they have us by 140 helpful teenagers).
TOMORROW, as in, TOMORROW TOMORROW
This sloppy, occasionally slapstick post is probably all you can expect from trippy old-bones mel for the next couple of weeks. Tho, if I had the energy following treatments it would do my writer's pen justice to record my visions.
I'm already feeling some relief in pain, and fat face is depleting, yay yay yay. Let's hope this continues, because not all RSDSers respond to this treatment (which, Aetna, my insurance will not cover BTW...surprise, surprise).
So...my visions and I will see you in a few weeks, and if we meet again sooner, won't that be nice.
Labels:
Advocacy,
Clinical Trials,
Events,
Family 'n Friends,
Glamour Gimp,
Insurance:Love It Hate It,
Ketamine,
Mel's Meanderings,
MS,
Politics 'n Illness,
Take Action,
Treatment,
Update,
Your Turn
11.21.2009
Sickos. Glamour. Giving. Ain't that what it's all about...
You all know by now, I like to shop - online, in line, in tiny shops, and medium-sized shops - but not big corporate chain stores and malls - yikes - they give me the creeps and aren't so good for a gal sans immune system.
I'm currently going through plasmapharesis treatment - it brings out the "best" sicko in me - but makes life a danger because it removes every single antibody from my system, i.e., I am immune-less (don't you love made up words!), i.e.#2, as long as I'm receiving plasmapharesis, there isn't anything my body can do to fight off whatever popular germ floaters pass my fortress of hand sanitizer.
All of you are potential medical enemies. Since I believe that getting sepsis once is enough, I'm choosing to spend my disability dollars (what few are left after life's expenses) online.
Don't ask me how I find these pleasant little shops - as you know my memory has a 30-second limit - so when I find a fabulous virtual store, it's like stumbling into a "pleasure chest." Just like when I was a choreographer - it's my job to make it up and your job to remember it.
SO REMEMBER THIS...
Appropriately branded, Lavish Giving, this boutique's plush to posh array of unique, practical, or just plain pretty gifts for everyone from your boy toy to your pampered pet is for all of you gimps and givers.



The Ohio-based owner, Jane, is a gracious cancer survivor with a mission. In recognition of the value of medical research, when you spend $100 she donates 10% of that to the charity of your choice. Even you frugalistas will find this user-friendly site a breeze to navigate, and your cart will arrive gratefully to the $100 finish line before you know it - full with gifts for all, even yourself.
PS
If you have the urge to give the gift of giving to me, I'll gladly accept your philanthropy on behalf of all the worthy medical research charities. Just email me for my address, size, or favorite color, and I'd be happy to oblige. And although I'd love the $800 foldable bike, my neuro-body isn't quite ready to take on a two-wheeler, let a lone a tricycle, or a car.
I'm currently going through plasmapharesis treatment - it brings out the "best" sicko in me - but makes life a danger because it removes every single antibody from my system, i.e., I am immune-less (don't you love made up words!), i.e.#2, as long as I'm receiving plasmapharesis, there isn't anything my body can do to fight off whatever popular germ floaters pass my fortress of hand sanitizer.
All of you are potential medical enemies. Since I believe that getting sepsis once is enough, I'm choosing to spend my disability dollars (what few are left after life's expenses) online.
Don't ask me how I find these pleasant little shops - as you know my memory has a 30-second limit - so when I find a fabulous virtual store, it's like stumbling into a "pleasure chest." Just like when I was a choreographer - it's my job to make it up and your job to remember it.
SO REMEMBER THIS...
Appropriately branded, Lavish Giving, this boutique's plush to posh array of unique, practical, or just plain pretty gifts for everyone from your boy toy to your pampered pet is for all of you gimps and givers.




The Ohio-based owner, Jane, is a gracious cancer survivor with a mission. In recognition of the value of medical research, when you spend $100 she donates 10% of that to the charity of your choice. Even you frugalistas will find this user-friendly site a breeze to navigate, and your cart will arrive gratefully to the $100 finish line before you know it - full with gifts for all, even yourself.
PS

If you have the urge to give the gift of giving to me, I'll gladly accept your philanthropy on behalf of all the worthy medical research charities. Just email me for my address, size, or favorite color, and I'd be happy to oblige. And although I'd love the $800 foldable bike, my neuro-body isn't quite ready to take on a two-wheeler, let a lone a tricycle, or a car.
Labels:
Advocacy,
Art,
Fashion/Beauty,
Glamour Gimp,
Plasmapharesis,
Retail Therapy,
Treatment,
Update,
Your Turn
4.30.2009
Become A Glamour Gimp

NEW POST SERIES
This is a new series on my fave sites for sickos and non-sickos alike. Our lives may suck, but we must rock, and retail therapy, especially FREE or discounted retail therapy is great medicine. While it may not compare to oxycotin, it's more like apples and oranges, and one needs both the fiber and the vitamin C. Right?
I had to get this one out immediately, as ideeli is having a Vera Wang necklace giveaway (see pic to left).
And ideeli's not just for girls. They have men's giveaways and super deals too.
From Ideeli and Me:
Source: www.ideeli.com
You're invited to join ideeli, an invite-only shopping community where you get insider prices (up to 80% off) on luxury fashion, home and beauty brands. PLUS, ideeli has extraordinary weekly giveaways! Membership is free but you have to be invited to join- so join now.PS The more of you that join, the more chances I have to win the Vera Wang necklace, so act quickly and then get your friends to join on your behalf. One of us deserves this beauty. Let's get this neuro detour on its path.
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In Pictures
Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
To play the slide show, click the big play button in the center of the screen, then the small one in the bottom left corner. Click here for more advanced viewing instructions, and select "Help."