Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.

I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. sucks, but I still rock.


The Results Are In

Here are the official results to January's Poll (and the first ever Neuro Detour Poll). Thanks to everyone who participated (and no-thanks to those who didn't: NOTE: see friendly smile).

Thirty-four voters. Not bad for a first poll or for a blog on VERY rare disorder. BUT, since Neuro Detour's October inception, we've had more than 1,000 visitors, so I'm hoping, asking, pleading(?...not quite/strike that) that the next soon-to-be posted poll will entice more interaction. Don't forget, we (me) TM'ers are often home-bound, so your interaction means a lot to us (me).

You still have a chance to redeem yourself this round by posting your comments here or anywhere on Neuro Detour. And if you're one of the lonely two who selected other feel free to use this space to explain your other-ness. And if you're not, use it anyway.

What Made You Interested In Checking Out Neuro Detour?

Total Voters: 34
Poll closed: 1.31.09

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If you're a Philly-region person with TM, please consider joining the Transverse Myelitis Philadelphia network (, a new social networking group that I started for people with TM so that we can meet and chat casually. It's only on Facebook for now, so, if you haven't already, join. It's easy.


In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
To play the slide show, click the big play button in the center of the screen, then the small one in the bottom left corner. Click here for more advanced viewing instructions, and select "Help."

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