Living Obliquely

Approximately 1400 people are diagnosed with Transverse Myelitis (TM) annually.
Similar to Multiple Sclerosis, it attacks your myelin, leading to painful and debilitating side effects.
About 33,000 Americans are currently disabled as a result of this rare neurological disorder.
Not one person with TM will ever know their prognosis.
I happen to be one of them.

I am a neurological soup. Since my TM diagnosis, I have developed encephalitis, MS, RSD/CRPS, Osteoporosis (I am 34, no 35, eek), and Chronic Anemia. sucks, but I still rock.


Philly Healthcare Rally: TOMORROW!!!

This is from Health Care for America Now!

I support Health Care for America Now
Do you? You can sign up for their mailing list on their Website to receive your own updates for your city.

If I'm up to it, I'll be at the rally in person...if not, in spirit for another Melanie who's been screwed by the healthcare system (with much more deleterious results)...and for everyone who deserves accessible, affordable health care. Wanna join me?

Here's the DL...

Rally for Health Care Reform and the Progressive Agenda

Click Here to RSVP

For more than a year, we've mobilized to reform health care, rein in Wall Street, create good jobs, win workers' rights, and combat global warming. We're tired of waiting. So a group of Pennsylvanians are marching to Washington to say:

We voted for change. Get it done now. Get it done right.

We are Marching to the Finish Line for Melanie Shouse. Melanie passed away last

week. She had been fighting against her insurance company for chemotherapy coverage and with all of us for heal

th care reform.

Marchers will be leaving Philadelphia from this Rally to begin a 8 day, 133 journey to Washington, DC for health care reform!

Rally: Mother Bethel AME Church, 419 S. 6th Street, Philadelphia

Wednesday, February 17, 12:00 Noon

Help Send off the Marchers! You can even walk part of the way with us.

Click Here to RSVP

Also check out

No comments:

Post a Comment

Thanks for sharing your comments on my blog. Please stop back soon or subscribe by clicking

If you're a Philly-region person with TM, please consider joining the Transverse Myelitis Philadelphia network (, a new social networking group that I started for people with TM so that we can meet and chat casually. It's only on Facebook for now, so, if you haven't already, join. It's easy.


In Pictures

Please Note: Some photos may contain partial nudity or depictions of medical procedures. Though I am in many of these photos, my reason for sharing these personal photos is to promote awareness, understanding, and advocacy for people with TM and other rare diseases.
To play the slide show, click the big play button in the center of the screen, then the small one in the bottom left corner. Click here for more advanced viewing instructions, and select "Help."

Twittering Mel

    follow me on Twitter

    Neuro Art Latest

    See My Art Published in Monkey Puzzle Issue #7

    See My Art Published in Monkey Puzzle Issue #7
    Representing TM through Art and Dialogue...Locally, Nationally, Virtually.