...Another very telling ignorance - I don't even know when it's a national (or maybe even world wide?) day in celebration of me - and many of you who read Neuro Detour or know me personally, know that I'll find any excuse to celebrate. And when I say celebrate, i mean CELEBRATE.
The linked article (click on the title of the blog) is written by a fellow rare-disease-fighter, Wayne Brown of Buffalo who has Acromegaly. While, he may not be as rare as we TMers, take heed. He's good. He's right on. And, he's published! Congrats and thanks, Wayne.
What he didn't say, but I will:
Go buy some champagne (Freixenet works on most of our budgets :) ) and take the day off from being sick...if you can. Let everyone around you do everything you need or would normally do today.
Do nothing but relish in YOUR day.
Enjoy,
Melanie
PS I think all of you non-rare-disease sufferers should also celebrate this day by sending cards filled with money - lots and lots of money - to your favorite rare disease sufferer(s). We're most likely on a tight budget and a little (or lots and lots of) extra $$$ for bills, insurance, meds, or equally important, some self-indulgence is just one way you can make a difference.
Another option is to take that money and donate it to the charity that is working to cure their illness. Whether you're the sicko or the sickee, today's one of many days to do something good.
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If you're a Philly-region person with TM, please consider joining the Transverse Myelitis Philadelphia network (http://www.facebook.com/inbox/?ref=mb#/group.php?gid=44446668472), a new social networking group that I started for people with TM so that we can meet and chat casually. It's only on Facebook for now, so, if you haven't already, join. It's easy.
Best,
Melanie