Losing Vision, Losing Sight

Over the past few months, I've dealt with an irksome but manageable symptom: blurry vision. Annoying? Yes. Life-altering? No.

During the past two weeks, while I CONTINUE to wait for Aetna's response to our claim for IVIg treatment coverage and while my neurologist was on vacation, I began to lose my vision. On Tuesday, December 30, I awoke to the walls closing over my eyes - extreme blurriness, double vision, and lack of peripheral vision.

While the written word is my medium, since I can't see it, I'm compromising with myself. I'll be posting V-logs until I get the software and technology that I need to be able to communicate in the way I feel most comfortable, and coincidentally, the way I make my living. (shhhh!)

Today was a hectic, non-stop gut-wrenching, physically-emotionally-spiritually drop-you-on-your-ass-life-you-up-then-repeat-the-cycle-all-over-again day. (See, I can't help but write.) I'll let the vids (not my hair in them!) do the talking.

Losing Vision, Losing Sight - Part 1

CLIP 1: A title changed by a corrupt medical system



CLIP 2: It's My Body



Losing Vision, Losing Sight - Part 2
My Life Sucks, But I Rock





I could not occupy another pixel of space in this world today without thanking and acknowledging the following people and organizations for their combined support, advocacy, and services:

Jennifer Jaff, Advocacy for Patients with Chronic Illness, Inc.
Kris McFalls, IG Living
David Goldfield, Associated Services for the Blind and Visually Impaired (ASB)
Temple Institute on Disabilities' Assistive Technology Program
Mom
AM (Aunt Marci)
Dr. Arthur Huppert, Rheumatologist, Drexel University

For technology and assistive resources for the blind and visually impaired, I strongly recommend Temple and ASB (links above). Though locally based, they are national in reach.